Still in a flare - no end in sight
Hi everyone -
Well, its Monday morning again, and I cant believe that the summer is almost over and another week has begun. Its like the last two months have gone by in a whirl and I wish I could say its because things have been so great that time just flew by! THat is not the case here...
As Ive written before, I was initially told to start weaning off of the pred to 15mg, and was unable to do so as I started to flare. After going back up to my normal 20mg, I became even worse. GP put me on taper, and it has done NOTHING but make me HUGE...You guys, I dont even look like me anymore...You know, I told myself a long time ago that I would deal with the physical changes, because at least I would be feeling well. Now, I look awful and I also FEEL awful. My taper is now back to 20mg, and Im just not well - period, the end. I have the feeling still of internal swelling, like when I bend my arm or leg it feels as if its going to break open (does anyone know what I mean?). Also, Im just out of it...really brain foggy, and soooo weak. I have to let my arms rest every few minutes while Im folding laundry or washing my hair. After being on my feet for a while, the pain is just brutal going down my legs into the bones of my shins and heels. I have to walk on my tippytoes sometimes. Its like there isnt a part of my whole body that isnt affected right now
There is every kind of pain - muscular, joint, bone and skin...burning, shooting, throbbing - all of it....Why isnt my prednisone and plaqueinil working? I want OFF of it as soon as possible....I loved it before, because I felt GOOD!! Now, all I have is the lousy side effects and no relief. What do you think my doctor will do? Im thinking start the Imuran, as last visit he wanted me down on the prednisone, and that doesnt seem possible now.
Im sorry - I really needed to vent...Im frustrated, bored...I also think I have an infection either in my sinuses or chest...My lungs sounded junky at the ER, and I have a lot of pressure in my eyes....uuughhhh!!!! Please, GOD, I need a break....
THanks for letting my vent, guys...Any ideas as to what is going on with me, or if you have experienced this type of problem (remaining in a flare on prednisone) I would be interested in hearing about it.
Hope everyone is having a good, flare-free day...
For God has not given us a spirit of fear; but of power, love and a sound mind. 2 Timothy 1:7