How are you today, Rob? Hope the tests weren't too terrible. It just seems like a very cruel joke some days, doesn't it? You're sailing (or flying!) along, minding your own business and then..WHAM...some crummy disease sneaks up and flattens you. It tries to steal time, peace of mind, confidence, joy....tries to take control. I spend a lot of time in denial...pushing through the pain when I can. That works sometimes. You're dealing with some serious stuff, Rob, so 'pushing through the pain' would be pretty tough. I'm so impressed with all that you do in spite of your illness. And your Dad....what an amazing guy...you are so lucky to have him!
Lauri, I have bursitis in my hips, too. It comes and goes, and prednisone didn't always control it. I've also had cortisone injections in my hips, twice. Didn't touch it. For many months it was so bad I could only walk a short distance before I had to sit; felt like I was sleeping on rocks. Then, it was gone for a short while; now it's back again. You've gotten some good advice. Do what you can; make memories with Jack out of the things you're able to do with him. Believe me, whatever time you spend with him will be what he remembers. It won't matter if it's indoor, physically easy stuff. He just wants your time and attention. You are a good mom to care about that...not all do, you know. I hope today is a better day.
"If you trust Google more than you trust your doctor than maybe it's time to switch doctors."