Hi and welcome to the forum. I am sorry that you are having such a hard time. I think that the doctor is doing the right thing by testing you and all before he gives a final diagnosis. It is very hard to get a diagnosis of Lupus, because this illness can mimick so many other illnesses. The Rheumatologist should be able to sort it all out for you. I am wondering if you are sunsensitive and do you have the malar rash? There will be others that come in here that are very knowledgeable and they are wonderful.
Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.
Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.