I hear where you are coming from. I am going to be 50 in December and I finally got diagnosed at the age of 36. I was in my early 20's when I started going to doctors, because I was very very ill from the Lupus symptoms and none of the doctors I saw would listen to me and they treated me like I was a hypochondriac and a worry wort. It was terrible. I got so fed up that I refused to go to a doctor until I was 36 years old. I had gotten the Chickenpox at the age of 35 and boy after that my health went right down hill. I nearly died before I finally got diagnosed and put on medication. I guess what I am trying to say is that you can not let this illness get out of control, because it could kill you. You need to get into see a good Rheumatologist as soon as possible. You have the right to ask the doctor you are seeing for a referral to a Rheumatologist. You also have the right to demand that the doctor order all the tests they can think of to test for Lupus. You see you are paying them for their services and you can tell them that if they do not want to do what you want them to do for you, then you are not going to pay them as they are not performing their services. This is what I had to do to get the doctors attention. I got tested and sent immediately to a Rheumatologist who told me that I have the most classic case of SLE Lupus that he had seen in years. I started to get treated and am doing ok. I hope that you can get into see a Rheumatologist as soon as possible. Do not take a pile of Tylenol as that can destroy your liver big time. There will be other folks who post in here that are great and they will have more information for you. Welcome to the site and keep us posted on what is happening ok.
Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.
Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.