I am a member of a support group and I do have some do and don't rules that I like to follow.
I do not like when only one person dominated the entire conversation.
I do not like doctor bashing or swaying someone from what their doctor recommends.
I do not like the group that only complains and doesn't want to learn.
I do like supporting each other and helping other group members get to the meetings.
I do like passing books around for others to read or having a book club as part of it. There are some fabulous motivational books or good stories out there or educational books.
I do like including the local Lupus Association or Society branch, especially getting the latest information from them.
I do like including videos and pamphlets from the local Lupus chapter.
I do like also having experts from the community come in with alternative therapy options.
I do really like talking about the treatments that works for them and having them bring it to their doctor.
A support group is just that, to support each other, improve quality of life and inform/educate the people in the group.
A support group is a fabulous outlet for people and also a release for the family because they have someone other then their spouse/partner/relative to talk to and they still feel supported.
I found because I have that outlet, I don't feel the need to talk about it all at home as much. My husband doesn't mind at all, but I like to talk about more pleasant topics as well.
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