Had Appt with GP today - 1st since DX
Hey all -
Great posts today!! I love relaxing and reading this board! So, I went to see my GP for a follow up today. The last time I saw her, she had said she thought "neg.ANA lupus", gave me pred. and plaq, and sent me to rheumie. She said she got letter from rheumie saying he agreed with her Dx (she gave me the 'I told you it would be OK!' look, because I told her I didnt want to go and get brushed off again!).
She said he would talk to me when he saw me on the 28th, but he discussed his concern with my CRP still being so high while on the prednisone. He said he wants to taper the prednisone, and start Imuran. He is really concerned about my bones, as they already have damage from steroid use years ago. Any experiences with Imuran to share? I will def search the site here too.
Also, I made it a POINT to commend her on how she thought a little outside of the box, and went ahead with a rare Dx and treatment. I said to her, "By you doing that, I have my life back...My children have their mother back...Thank you so much. I know, had I seen another doctor, who didnt want to be "hasty", I could very well still be in bed sick today"
Well, she started to CRY!! She got all teary and said, "That is a really nice thing to say, thank you.." I said, "I mean it. I have been really learning alot about this, and the number of people who stay undxd due to doctors not wnating to be wrong is horrific" She said she knew, and she was so glad she could help. It was really important to me that I make her aware of HOW IMPORTANT it was to take that step. Now, maybe the next time a thirty-something year old woman comes in with swollen joints and fatigue and a rash, she'll think of me - and maybe save some poor soul years of being without treatment.
I am so incredibly grateful that God brought this doctor into my life....Thank You GOD!!
Talk to you all soon -
For God has not given us a spirit of fear; but of power, love and a sound mind. 2 Timothy 1:7