Welcome to the site. I can sure understand how you feel. I have had Lupus and Sjogrens for a very long time. It took over 30 years for me to finally get diagnosed and treated, because the Lupus was very insiduous and I did not get the Malar Rash until I was 35 years old. I did not even pull a positive ANA until then either. I had all of the other symptoms since the age of 5 years old up at different times during the illness. I understand how it feels to be in pain and feel like you have no where to turn for help and support. Are you on any medications for the Lupus? There are a lot of folks in here that have Lupus and there are quite a few that are still awaiting a diagnosis. Everyone is great. I just want to say that I am happy that you have come here to talk with us.
Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.
Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.