Hi Donna -
I am very happy the doc decided to put you on Plaquenil, even though she feels unsure if you have lupus. I am no doctor, but it sure sounds as if you do...particularly with the skin problems. Rashes/skin are a hallmark sign of lupus. Also, the "other" tests for lupus are just guideline tests...there is no ONE test for lupus - its a differential diagnosis.
THere are 11 criteria set forth by the AMA for lupus. If a patient has 4 of the 11, they can be Dxd with lupus. ANA is one of the criteria. The other tests are part of other criteria. There are alot of other things that, collectively, can point to lupus. I am one of the few that have been Dxd WITHOUT a positive ANA, or anti-DNA. however, I have most every other symptom, so I am Thank You Jesus - being treated. I felt better immediately. Please try to take the plaqyuenil....it really does work, and is one of the safer medicaitons out there for lupus.
Glad you found your way here - this site is a Godsend for us "newcomers". I have learned SO MUCH here!
For God has not given us a spirit of fear; but of power, love and a sound mind. 2 Timothy 1:7