Well i'm the same as many other's just glad i read this thread. For one if i sit outside for 10mins the most when the suns out i feel like a chicken dropped out the oven. I get skin rashes and blisters on my face and i had the butterfly rash a good while ago and i do feel sorry for other member's suffering that because it just drags on before it wants to leave and the soreness is unreal.
The specialist as had my eyes tested and they're in a bad way for reading and outside i wear tinted glasses but having the epilepsey ontop of thing's does'nt help where light's are concerned and now my canopy sunbeds had to go and i'm not pleased on that score i love having a tan but it's the soreness afterwards which gets you down.
I am sorry to hear that your reactions to the sun are so extreme. Most of us find that we must avoid the sun (as well as fluorescent lighting) at all costs. We have to cover our bodies, from head to toe, before going out into the sun and wear sunscreen ALL of the time. Even with all of the precautions, we still make sure that we avoid the sun as much as possible. Tans are a thing of the past......sorry :-(
Peace and Blessings
Look For The Good and Praise It!
Hi, i want to thank you for these posts and for the whole forum, this looks like there will be a lot to learn here, there is a lot i need to know.Thank you to everyone here !
It is so good to hear these words. I get so sick from the sun. I have to drive in it all day for my job. If I don't use all the precautions, I will fall asleep at the wheel. It's hard to function. I sometimes miss the vitality I user to have. Yet I am blessed to have a lot of people who love me.
Tammy the sun is lethal mate with how we suffer and i could'nt drive in it all day like yourself, i'd most likely end up being sick.
Yes you've got loads of love and support off us all here.
Yes, it is! I'm just putting together all these odd symptoms I've had for so many years and realizing that they are all related to the Lupus. I'm reading a book on Lupus and every day I stumble upon something else that ties in with it that I haven't even thought of as being a Lupus symptom.