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Thread: Hi from Rob

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    rob is offline Super Moderator Super ModeratorEmperor of the World
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    Default Hi from Rob

    Hi everyone,

    I just wanted to tell everyone that I fell again last night. This time it was like somebody flipped a switch, and I lost all control. I hit hard, but only sprained my thumb this time. I hit like a load of bricks though. I couldn't even break my fall. I have a neurologist appointmeant on monday. It got moved up. I don't now if it's Lupus related CNS symptoms or MS. I have been struggling to piece together sentencese today. I cannot remember my street addreess or my cats names. I have a thought and it just disappearss. I know I thought something, but I don't knoww what. They are going to do a lumbar punkture, which they did not do at first. Have to have more testd with the electrical, I can't remember what they are called. It's a measurment of nreve signals. I sound like crAP, so I need to go. thanks everyone. I 'm sorry I sound awful. No spelling bee for me right now.

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    Oh, Rob,
    Thats horrible...it really sounds like MS symptoms to me, but Im no doctor, of course. I hope the evoked potential test shows something they can help you with. Maybe some more prednisone if your myelin sheath is inflammed.
    Please try to rest and let us know as soon as you can how you made out, OK?
    Warm thoughts and many prayers coming your way....
    Lauri
    For God has not given us a spirit of fear; but of power, love and a sound mind. 2 Timothy 1:7

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    Oh Rob, I am so, so sorry. :cry: Sorry that you fell, that you are having these problems, that it's affecting your ability to recall things.

    It is such a frustrating and scary feeling to have your body go out of control. To be fine one minute, and falling the next. No warning.

    I wish one of us could be with you to pick up the pieces. To help you up, make sure nothing is broken, and give you the hug and reassurance that you are not alone.

    I'm a tiny person, 5'2, barely 105 pounds, and I know you describe yourself as a big man (over 6 feet), but if I could not help you up, I would sit on the floor with you and hug you and hold you and let you know you are not alone. I would bring you ice for your sprained thumb, and find a way to crack a joke that would bring a smile to your face. :lol:

    I know this doesn't do much good when you're on the opposite coast from me, but with my offering of words, I also offer my caring concern.

    I am sorry that this is happening to you and I truly hope that your Neurologist will figure this out. I will pray that this will be something that they can fix.

    My thoughts are with you today. Perhaps your cats won't mind being called "kitty" for the moment. I know they will love you anyway.

    Sending my caring Cyberhugs your way.................

    Lori

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    Hi Rob..hugs full of love....

    Did you get my last PM from yesterday, Rob?

    Wanna do email chat? The PM stuff is sometimes hard remembering what the other said if you don't do the quote feature...

    In case deleted by me
    Love,
    Oluwa
    Last edited by Oluwa; 09-23-2009 at 03:38 PM.
    I have Lupus. So *^#@! what.

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    Hi Rob,
    I am sorry to hear that you fell again and got hurt again. I feel for you big time. The electrical test they want to do on you is to test for Periferal Pneuropathy. I had that done on my legs. When they do the test do not take aspirin or any blood thinner. The used electrical impuls and needles pricks. They thought that I too had MS. I even went through the MRI on my head and a spinal tap. They did all this only to find out that I have PA Pernicious Anemia and have to take Vitamin B12 shots every month. Have they tested you for this as well? Do you have Sjogrens with your Lupus? I am just wondering. I am glad that you did not get hurt very seriously.

    Hugs,
    Kathy
    Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.

    Medications:
    Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.

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    Ah, Rob....I'm so sorry that more trouble's come your way. Don't feel like you have to post....just read. We don't give grades for spelling here.

    We're here for you. I wish one of us could've been there to help you. Sure could be either CNS lupus stuff or MS. Docs will have to sort that out. You're probably going to have a nerve conduction test of some kind? I hope today is a bit better - and I hope you're not alone. Can someone come stay with you for a bit? Check on you once in a while? Hope so....wish I could jet there and sit with you. Do take care and let us know how you're doing...when you feel up to posting.

    Jody
    "If you trust Google more than you trust your doctor than maybe it's time to switch doctors."

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    Rob,
    Im thinking about you. Sending warm thoughts and an big fuzzy teddy bear to land on .

    K

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    Oh Rob, how frightening! I too am thinking of you and sending health-filled and hope-filled thoughts and prayers your way - -
    ~"I find hope in the darkest of days, and focus in the brightest. I do not judge the universe." (Dalai Lama)

  9. #9
    rob is offline Super Moderator Super ModeratorEmperor of the World
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    Hi everyone,

    I have my father here to help me with things. last night was bad. I tend to think too much, especially at night. I don't like doing that. What if this, what if that. Just have to tell myself there's nothing I can do about it today. My neuro appt. is at 11 am tomorrow. Till then just trying to put things out of my mind. My friend Wade from AZ sent me a funny picture. He took a screen shot from that movie A Christmas Story. The pic is the younger brother who had that huge snowsuit on. The one where he fell and couldn't get up because the suit was so huge. Wade took a funny old football helmet and put it on the snowsuit kids body, and photoshopped my face in the helmet. On the front of the suit it says"Rob's Bouncy Suit". The helmet is gold with these cheesy looking lighning bolts on the side. It will make me fall-proof! It's hilarious. Gave me a much needed laugh. i'm not as foggy today. I want to say thanks to all of you for your kind words, and support. It really really helps. I hope that I can give back the support you all have given me if any of you ever need it. I'll keep you all informed as to what happens tomorrow. Gotta go get some Zzzzz's for now.

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    Hey Rob,
    OK...Thats HILARIOUS!! I LOVE that movie...Glad your not as foggy. I think your brain fog floated down the East Coast and landed in my head...lol.
    If you are up for it, please let us know how your appt goes tomorrow. Your having an Evoked Potentials test, right? Im praying all goes well.
    And, by the way, you are always VERY supportive to others, including me. Its like we all take turns holding each other up...
    Get your rest, and take care!!
    Love Lauri
    PS - Wear your helmet tomorrow! lol
    For God has not given us a spirit of fear; but of power, love and a sound mind. 2 Timothy 1:7

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