Page 1 of 2 12 LastLast
Results 1 to 10 of 13

Thread: I'm not doing so well!!

  1. #1
    Join Date
    Apr 2008
    Location
    Columbia, IL
    Posts
    24
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default I'm not doing so well!!

    Hi everyone, I haven't been around much lately and I am sorry for that. Just when I thought everything was going in the right direction, I have been knocked down again. After working for only 8 weeks and doing great, I suddenly became very sick. I started running high fevers, I could hardly move my arms and legs and just generally felt horrible. At first with the arms and legs I just attributed it to the Lupus, but then with the fevers went to the dr. He knew immediately that I had a couple of things going on and put me in the hospital. I have pneumonia and am having a hard time recovering. My husband brought me my laptop, so at least now I can communicate with everyone who understands this horrible disease. The only thing that the dr is saying at this point is that my immune system is non existant because of the methotrexate, but I am so afraid that if I don't continue it my crohn's disease will take over my already weak body. I'm due to take it again on Monday and at this point, I'm not going to get it. I would love to leave here, but I do not even have the energy to get out of this bed. Thanks for listening...

  2. #2
    Join Date
    Jun 2008
    Posts
    915
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default

    Hi Dede,
    I am sorry to hear that this is happening with you. I hope that you get to feeling better and get on the mend and fast. I understand what it is like to be in the hospital and have your immune system crash. That happened to me in 2000 when I caught Salmonella food poisoning. I ended up in the hospital for a week on IV antibiotics. I was on reverse isolation for most of the time there. I take Plaquenil, Imuran and Sulindac. I too had to come off of the Imuran until I got better from that. I will keep you in my prayers.

    Hugs,
    Kathy
    Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.

    Medications:
    Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.

  3. #3
    Join Date
    Oct 2004
    Location
    Illinois
    Posts
    955
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default

    Oh Dede, I am sending many gentle hugs of support! I hope each day finds you a bit stronger and closer to walking out of there feeling WELL.

    My thoughts are with you -

    hatlady
    ~"I find hope in the darkest of days, and focus in the brightest. I do not judge the universe." (Dalai Lama)

  4. #4
    Join Date
    Jun 2008
    Location
    Quincy Ma
    Posts
    505
    Thanks
    2
    Thanked 15 Times in 14 Posts

    Default

    Hi Dede -
    So sorry to hear of your problems...I know you must feel so lonely being in a hospital for so long...I can empathize. Try your best to get as much rest as possible. Sleep heals our bodies..
    You are in my prayers and sending warm thoughts your way
    Love Lauri
    For God has not given us a spirit of fear; but of power, love and a sound mind. 2 Timothy 1:7

  5. #5
    Join Date
    Nov 2007
    Posts
    561
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default

    Hi DeDe, I dont think we have met yet. Im fairly new here. But I couldnt read and not reply. Im so sorry that you are going thru this.I have not been hospitalized for lupus. Hoping that I dont have to.

    Praying that you feel better real soon.

    Kasey

  6. #6
    Join Date
    May 2008
    Location
    Portland, Oregon
    Posts
    1,108
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default

    Hi Dede

    So sorry you're stuck in the hospital. That's never a fun place to be. And pneumonia is a really tough one to fight.

    I'm sending healing hugs your way and prayers that your body will begin to gain some strength to fight this off. I will pray for a boost for your immune system.

    Hang in there, keep your thoughts focused on feeling better and getting back home. I'm glad you have your husband to encourage you and bring in the laptop to keep you in touch with us.

    Get well soon!

    Fondly,

    Lori

  7. #7
    Join Date
    May 2007
    Location
    Seattle, Washington, USA
    Posts
    2,998
    Thanks
    256
    Thanked 146 Times in 77 Posts

    Default

    Dede...head hugs..close your eyes and feel all of our hugs...squeeze.

    How are things today? A day can make a difference....

    In my prayers you are, Dede.

    We always here for you, so don't apologize for time length in between posts. Usually time inbetween means good times, healthier times, we understand...we like that..that is what we all hope for, wish for...believe in when we don't hear from someone. Enjoy the time when it is here, so don't apologize for it..okay?

    Big hugs full of love...
    Oluwa
    I have Lupus. So *^#@! what.

  8. #8
    rob is offline Super Moderator Super ModeratorEmperor of the World
    Join Date
    Feb 2008
    Posts
    3,681
    Thanks
    426
    Thanked 1,105 Times in 628 Posts

    Default

    Hello Dede,

    I wish you felt better. This thing called lupus can invade your life and sucker punch you when you least expectt it. I hope you are ok.

  9. #9
    Join Date
    Sep 2006
    Location
    Minnesota
    Posts
    1,368
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default

    Hi, Dede....I'm so sorry you're having trouble. When your immune system is 'asleep' it's so hard to fight off things like pneumonia. But, without the immune-suppressing drugs, other things really can get the best of you. That's really being between a rock and a hard place, isn't it? I hope today finds you a bit better. Listen to your docs, rest, and try to keep your spirits up. Prayers and hugs to you, Dede.

    Jody
    "If you trust Google more than you trust your doctor than maybe it's time to switch doctors."

  10. #10
    Join Date
    Apr 2008
    Location
    Columbia, IL
    Posts
    24
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default

    Thank you all for your good thoughts and prayers. I had a feeding tube placed today as I just don't feel like eating. My lungs are so full and my chest feels so heavy. I am receiving breathing treatments every 2 hrs, and by the time I need another one my breathing is really bad. My labs were no better today so please keep praying that tomorrows will be better. Thanks to all of you...

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •