Hi Tina, and Welcome!!
You will be very happy you found this site - it is full of informative, kind and funny people who know EXACTLY what you are going through. I also went through the dispicable "diagnosis" roller coaster, and was finally diagnosed in May with Seronegative Lupus. My ANA has always been negative, however, my symptoms - which started more than 8 years ago - have FINALLY been enough to have first my GP, and then a rheumie Dx me with lupus. It is apparently very rare, but I feel its more common than they are willing to believe.
Yes, I agree: There is NOTHING worse than being sick, and having no diagnosis. There has not been any improvement in the lupus diagnostic process in 40 years, according to the LFA. That is unacceptable. I hear of SO MANY people out there with obvious SLE symptomology, who are brushed off, or told "maybe", lets wait and see....wait for what? Kidney failure!! Many here have been through the ringer with this issue, and some here have yet to be "officially" diagnosed. However, anyone is welcome here...which is wonderful.
The majority of us here are women in our 30s and 40s (there are men here too, especially Rob - whos awesome) and are mommies, too. Im glad you found your way to us - to inquire, vent or kick and scream if you have to.