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Thread: Sjogrens and Sinus Problems

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    Default Sjogrens and Sinus Problems

    I am wondering if there is a relationship between Sjogrens serious sinus problems? I am wondering, because I constantly have a stuffy nose and am wondering about this. I keep forgettting to ask the doctor about this problem. Could anyone give me an answer about this.

    Thanks,
    Kathy
    Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.

    Medications:
    Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.

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    Hi Kathy,

    I have SS and i had a sinus op last year (before my SS diagnosis). I don't know if it is merely a coincidence that I have both or whether it is a scientific fact! My sinus problems are much better after the op though!

    Sorry to be graphic but i use a saline solution to rinse my sinuses and it really does keep huge hassles at bay.

    All the best
    ColleenT

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    You know, that's a very good question! I've had a lot of sinus trouble lately, and I wonder if it isn't related to Sjogren's. (I have that as well.) Some mornings (or even during the day) I feel so dried out and yet so plugged up, the pressure can be pretty bad. Really gives me a headache. I'm going to do a little research. There's a specialist in Sjogren's at the Univ. of MN Rheumatology department. She was a wealth of information, but had the bedside manner of a drill sargeant :x - really hard to take. Saw her twice and then I just couldn't do it again....
    (I'm a wimp.....can't do the crabby doctor thing...I want someone to talk nice to me. :roll: )

    Jody
    "If you trust Google more than you trust your doctor than maybe it's time to switch doctors."

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    Hi Jodi,
    I can understand why you don't want to talk to a crabby doctor. I don't do well with them either. I believe that I did mention this to my Rheumatologist and he put me on Anti-biotics and Prednisone for a week. I think the Prednisone worked, but I am not sure, because I was on an antibiotic too. When I went off of both of them the symptoms were back worse then ever. I am going to look some more on the net too and see if I can find some more about this. Thanks for your advice Jodi. If I can find out some more I will post it.

    Thanks
    Kathy
    Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.

    Medications:
    Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.

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    Hmm...it wouldn't surprise me if there were a relationship between them - after all, you "dry out" with Sjogrens. And the sinuses like moisture.

    I've found that if I use a neti pot with a saline solution (about 1/2 to 3/4 tsp of kosher salt per "pot") at least once a week in the summer (it is HUMID here) and daily - sometimes twice a day in the dry winter months, it makes a huge difference in stuffiness, nosebleeds, and even reduces the sinus headaches.
    ~"I find hope in the darkest of days, and focus in the brightest. I do not judge the universe." (Dalai Lama)

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    I think that these suggestions are great and I am going to try some of them out. I don't like getting nose bleeds and that has been happening a lot with me lately when I have to blow my nose. I bought some ocean spray saline mist and am going to try that too. It is weird, but the Sjogrens did not show itself until after I got the Chickenpox. The Lupus symptoms got at 100 times worse as well right after I got over with the Chickenpox. It is strange how a virus can create so many problems for people with Lupus. Well I am going to use the saline nose spray and see how that works for me.

    Thanks,
    Kathy
    Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.

    Medications:
    Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.

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    Of course....count me in.. .I have had chronic sinusitis for years, under the care of a doctor at Mass Eye and Ear/ENT specialist. Mine even show up on my brain MRIs. This was long before I ever knew about my having Sjorgrens. A dentist professor at Tufts Univ Med. found my Sjorgrens when he looked in my mouth. I knew my eyes were dry alot and tears are really hard to come by (I can be bawling my eyes out and have almost NO tears come out), but I wasnt aware of my mouth being affected. Since then, my front tooth cracked/broke off at the bottom :shock: and I have damage to the teeth in the back. This BUMS ME OUT BIGTIME - as I (not to sound conceited) have always had REALLY nice teeth. Like, I would get compliments on a regular basis about my teeth. They just look different now - boo!! :cry:
    But, anyway, I almost ALWAYS have sinus pressure and the only thing that helps is psuedoephedrine, which you know have to sign your life over to get because they use that to make methamphetamine. Its worth it though, but I try to use it sparingly as it decreases effectiveness with too much use. In the good 'ol days I could go through a box of 48 in less than a week - easy. Im alot more careful about what I put into my body today - Thank God. In thinking about it now though, the psuedoephedrine does DRY up your sinuses - but it releives the pressure, too, and really helps with those types of headaches.
    Love Lauri
    For God has not given us a spirit of fear; but of power, love and a sound mind. 2 Timothy 1:7

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    Hi Lauri,
    I too use to use Pseudoephedrine until they disallowed anyone to buy it over the counter thanks to the Meth addicts. It makes me angry that a certain sector is allowed to cause this to happen. I sometimes get it for a perscription, but my doctor is funny about ordering perscriptions. He tells me to use over the counter decongestants. Oh well.

    Kathy
    Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.

    Medications:
    Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.

  9. #9
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    Kathy,
    Here in Massachussetts, you can still buy it, but you have to ask for it (they keep it behind the counter now) from a clerk. Then they run your liscense through a machine to make sure you havent bought alot recently. You are allowed so many a month.
    So, we can buy it, its just monitored by the state. A pain in the neck for sure, but at least its still available. Can you not get it at all where you are?
    Lauri
    For God has not given us a spirit of fear; but of power, love and a sound mind. 2 Timothy 1:7

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    Hi Lauri,
    They use to sell it from behind the counter here too, but the stores here in town considered it to be to much of a hassle and opted not to sell it at all. Doesn't that just suck big time. Go figure though. I think meth addicts should be taken out and shot, but that is just my opinion. I use to tell my kids that if you have to do drugs then you might as well be dead, because that is not living. I guess they listened to me. They do not mess with drugs of any type.

    Kathy
    Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.

    Medications:
    Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.

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