Is he taking medication for the APLS? Was he initially treated with asprin? If so, the normal test results may be due to the medication. I would think, as long as he is on the medication, that monitoring & specific tests would be done in order to see if the medication dosage needs to be changed or discontinued. You mentioned that his other tests were normal, do you know what those tests were?
Like other autoantibodies in systemic lupus, antiphospholipid antibodies can come and go in an individual. There are many ways to measure these antibodies, and different methods may not always give the same result. Since antiphospholipid antibodies can come and go, how often should doctors check for them in people with lupus depends, mostly, upon the doctor. There are no current recommendations on the timing of repeat tests. I would think that the antiphospholipid antibodies should be checked in people who have had thrombotic problems, or low platelet counts. Some individuals, who had initially been treated with aspirin, have had a second episode of thrombosis and have then been treated with warfarin. Also, some people had a second episode of thrombosis while on warfarin; however, treatment with warfarin appears to be successful overall. Is your son taking Warfarin or any other blood thinners? The length of time that this treatment is necessary is unclear and depends upon your son's symptoms and his doctor. Many doctors recommend long-term or even lifelong treatment to prevent future episodes of thrombosis.
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