I will be 50 years old in December. I have been lucky and not had to go on high doses of Prednisone. I was on a high dose of Prednisone when I first got diagnosed, but thank heavens the Plaquenil and the NSAIDs and the Imuran have gotten me pretty much under control. I am sorry to hear about the Necrosis of your hips. That is unfortunately one of the things that can happen with the use of Prednisone. I dislike Prednisone due to the side affects of it. I know that in certain cases Prednisone may be the only option. I take Prednisone, but only in low doses when I go into a bad flare. The sun is my worst enemy and I try to avoid it as much as possible. Is the doctor talking with you about possible hip replacement? I wish that they could find a cure for this illness, but until then we have to live with it the best we can. I think that it is one of the most mind boggling things I have ever had to deal with. I have two children that are grown up now and on their own. I have a new beautiful little grandson, named Tyler, that was born on June 4th. I am doing ok with the illness. I hope that you can get relief from the Avascular Necrosis of your hips. God Bless.
Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.
Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.