I am glad that you came to the forum. I am a very long time survivor of Lupus. I have had it most of my life, but did not get diagnosed until I was 36 years old. I will be 50 years old in December. My doctor believes that I have had it since the age of 5 years old. I know that you are scared, angry, upset about having this illness. Believe me I have been there big time. You definitely need to take your medications though. I am serious. The doctor knows what he is doing when he perscribes the medications for you. Yes there are side affects to the medications, but the good far outweighs the bad. Are you on Plaquenil? I know that it will take time for you to get the full benefit of the medications, but you will. Please, please, please do take your medications. There will be other folks that will post and you will see how wonderful everyone is here. It helps a lot. God bless and please keep posting.
Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.
Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.