I am sorry to hear about what you are going through. It is often times very hard to diagnose Lupus. A good number of us in here had been very sick for a long long time, before a doctor would diagnose Lupus. You have to have at least 4 of the criteria in the list of symptoms for Lupus, before the doctors will even consider Lupus. There are a host of Auto-immune diseases that will cause an ANA titer. I will put the list that I found on the web that they look for when determining if you have Lupus.
Here is the list:
Exams and Tests
Lupus (systemic lupus erythematosus, or SLE) can be hard to recognize, sometimes taking weeks to years to diagnose. Lupus affects different people in different ways, and it can take time to develop the symptoms that suggest this disease. Your health professional will record your medical history and perform a physical examination, checking for the presence of certain criteria to help diagnose lupus. These criteria are used to separate lupus from other similar diseases. A person with 4 of these 11 conditions can be classified as having lupus.1
Classification criteria for systemic lupus erythematosus:1
Butterfly (malar) rash on cheeks
Rash on face, arms, neck, torso (discoid rash)
Skin rashes that result from exposure to sunlight or ultraviolet light (photosensitivity)
Mouth or nasal sores (ulcers), usually painless
Joint swelling, stiffness, pain involving 2 or more joints (arthritis)
Inflammation of the membranes surrounding the lungs (pleuritis) or heart (pericarditis)
Abnormalities in urine (test results show increased protein in the urine or clumps of red blood cells or kidney cells, called cell casts, in the urine)
Nervous system problems, such as seizures or psychosis, without known cause
Problems with the blood, such as reduced numbers of red blood cells (anemia), platelets, or white blood cells
Positive antinuclear antibody (ANA) test
Laboratory tests indicating increased autoimmune activity
I hope that this helps and if you have at least 4 of these going on I would definitely seek out a second opinion. Good luck and I hope that you can find some answers.
Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.
Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.