Hi Mr Mightyblocksman,
I am sorry to hear about what is happening with you and your family members. I think that all of us with Lupus have heard similar things through the years. You have to think of them as just being ignorant and distance yourself from them as much as possible. Do not let them stress you out, because stress is really bad for people with Lupus. It can throw you right into a nasty flare. I use to stress at first about family members making mean and ugly remarks to me, but not anymore. I just tell them right out they can have their opinions and they can keep them to themselves or they can leave. They have gotten a lot better towards me as they do not talk about Lupus and I don't share anything with them. There are people that you can talk to and others that just plain don't get it and you can not talk with them. You will find in time who your true friends are. I wish you the best and know that you can always come here and post, as nobody will treat you like that. We all get it. God Bless,
Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.
Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.