Nice to meet you. I have had Lupus for most of my life, but like you did not get diagnosed until I was 36. I have a cutaneous rash on my feet and hands that is due to Lupus skin vasculitis. I am wondering if they tested you for Discoidal Lupus and or Scleroderma. Do you have a sun sensitivity? The sun sensitivity is a big problem with me. I am just wondering. Welcome to the forum and there are a lot of us here. There a lot of wonderful folks here that can help out a lot. God Bless.
Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.
Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.