Wow what a flurry of a day... outside and inside at your hospital stay. I am glad you are here, alive...and with a four month old son...ah...Happy Father's Day to you...
I, we know what you mean, we hate the disease. Sometimes that hate makes us dislike ourselves and we curse, grumble at what we have become and long for what was.
You will find your routine with caring for your son, in the things you can do. Feeding, napping with him, tubbing with him...folding a few clothes, washing his face..laying on the floor with toys on a blanket.
Sometimes we have to modify the domestic stuff...or do them in increments. Find shortcuts. Do what we can, but never feel guilty for what we can't.
I always say make a to do list for today then cut it in half for the day. Don't drain yourself, save some for tomorrow...and rest to recoup what you just used.
You won't have difficulty getting people here to understand...in real time, it can be a problem. For me, I decided it is better I understand them in why they don't get it instead of trying to help them to understand. They don't have IT...we can use many metaphors, relate to an emotions, a feeling and well, it sometimes, many times doesn't work....We can explain, they understand but sometimes by nightfall, it can be okay lets go.. whats ah, wrong...I just say It (Lupus) is doing ITs thing. I refer to IT as a separate entity...IT's own...He toys with me...
IT does what it wants, and I have to accommodate IT...and too I can manage IT a bit...you know, the usual....by
I try to....eat clean for the most part, avoid junk, anything in a colorful wrapper. Avoid preservatives, color red, artificial sweeteners, exercise a bit each day. Manage stress, breathe in deep...care for my spirit. Give myself a mental break...cover, protect from the sun. Be kind to myself and not talk bad about myself, in my head while in bed, while anywhere...
Butterfly rash..I have. Have you been in the sun, under stress? Mine use to come and go...for over 18 months it hasn't left. IT took up squatter's rights on my face. It goes from light pink, and when in a flair without Jones of NY it is red. Use your SPF. Handle your skin with care..maybe a little Cetaphil cleanser and lotion. No slap, slap with aftershave...
Be kind to you...especially today, it is Father's Day..again Happy Day.
Read about, chat about..not very many men, but the ones we do have are greatest, we cherish, we admire. I do.
Your posts, our posts...we all help each cope..so I do hope you post often. We learn, laugh...and sometimes writing about your day, your life will heal, release your woes, minimize the stress...and never apologize for moaning.
Gosh, if I did...there would be pages of..oh, sorry