Hi Michelle :lol:
Welcome to our family where everyone is familiar with the aches, pains, sun sensitivity and total lifestyle changes that comes with Lupus.
The steroids used in the treatment of Lupus are not anabolic steroids and, therefore, should not be included in the ban on steroid use with athletes. The steroids that we use are called corticosteroids. Cortisone is a steroid that is manufactured naturally by the body's adrenal glands. Cortisone has been found to have a distinct anti-inflammatory effect which is very useful in Lupus because Lupus causes inflammation in our tissues, joints, and organs. Cortisone medications made synthetically are among the most effective anti-inflammatory drugs known as they can substantially reduce the symptoms associated with inflammation, such as:
Prednisone is the most common corticosteroid used in the treatment of Lupus. Is this what you are taking? Since you mentioned the "moon face", I figured that you were taking Prednisone.
Most of us have had to give up many outdoor activities because of our sensitivity to the sun. However, there are many suggestions throughout these forums, about how we can protect ourselves from the UV rays in order to enjoy short periods of time in the sun. They basically advise that you should always wear sunscreen (a minimum of 35 SPF) that protects you from both UV and UVB rays. Scientists have classified UV radiation into three types - UVA, UVB, and UVC. The stratospheric ozone layer absorbs some but not all of these types of UV:
* UVA Not absorbed by the ozone layer
* UVB Partially absorbed by the ozone layer
* UVC Completely absorbed by the ozone layer
* UVA and especially UVB penetrate the surface of the skin and can cause the adverse health effects listed above.
Also, think about wearing a hat whenever you are outdoors, as well as sunglasses with UV protection. There are several clothing lines that offer UV protection in the clothing. They are rather expensive, however. Otherwise, dress in layers, making sure that you keep your arms and legs covered at all times.
I hope that this information has been helpful to you. Others will be along to welcome you to our family. Just know that you are not alone!
Peace and Blessings