Perhaps I am not the best person to respond to your post as all of the fears you mentioned for your young daughter actually happened to ours and we eventually lost her to this disease. Therefore, I can truly understand and empathize with your fears as a parent of such a young and energetic child.
Let me say this, many people do continue to live healthy and active lives, especially those like your daughter who caught the illness early and began treatment immediately. Also in her favor is the fact that she is so active and exercise is one of the best weapons against this disease.
She will experience some days of true and unexplainable fatigue and she will need to have productive rest periods to overcome that fatigue. Encourage her to participate in any physical activity that she wants to pursue. However, be very understanding when she reaches a point where she can no longer particiapte and make sure that you let her know that she IS NOT a failure..she just needs to understand the changes in her body and try something new. Remember, many people have achieved remission with this disease, especially when it is caught early and treated eary!! I was always very physically active, I now swim laps in order to maintain a regualr exercise program as it is not so strenuous on my body! She may need to try many different types of sports and/or activities..encourage her in this area!
Best of all and most importantly in her favor, she has a loving and supportive and understanding family. That, alone, will make the biggest difference in her outlook on life, her ability to cope with her illness and her self-esteem.
While many people are presidsposed to Lupus, there need not be a history of Lupus. Some families are predisposed to auto-immune diseases due to genetics and there are so many different auto-immune diseases out there. No one knows the exact cause of Lupus (which is why there is not cure yet!) and there are so many variables which can lead to an onset of the disease. I could find no definative evidence linking oral contraceptives to an onset of LUPUS. I think that it is more an age factor and the hormonal changes occuring within the body that can make the disease active. That is partially why it occurs mostly in young women of your daughters age and/or of child bearing age!!
We are here to help you as much as we can..feel free to post at any time that you may have a question, concern or just want to share with us. This forum was designed to provide as much support as we can give.
I wish you and your daughter the very best!!!
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Peace and Blessings