I have SLE and am a mental health therapist. One of my areas of interest is assisting women and their partners in dealing with chronic illness. I'm currently exploring what partners do that is and is not helpful to women in dealing with their disease.
Please let me know what your partner does/has done that has been helpful in your adjustment to living with a chronic disease. On the other side, what are some things your partner does/did that increases your trouble adjusting to and dealing with the changes and losses caused by SLE.
And, for those that are not in a relationship or were not at time of diagnosis............Any feedback about the pros and cons of not being in a relationship as it relates to living with chronic disease would be helpful.