Oooo, ouch, NoodleMom. That sounds painful. Yeah, sun protective clothing really does help, but I think you need to couple that with sunscreen, and limited sun exposure.
LLBean has a line of sun protection clothing. So does Gander Mountain (an outdoor sporting goods store here in Minnesota - don't know if you have them in your area.) I think you can also find them at some of the bigger sporting equipment stores, like REI or....hmmm....the name of the other one I had in mind escapes me. Brain fog! :?
Sorry you had to find out about being sun sensitive the hard way! Maybe that's the only way to know, huh?
"If you trust Google more than you trust your doctor than maybe it's time to switch doctors."