Cheryl, I'm not as sun sensitive as some out there. I have friends with lupus who react almost immediately - you can see them get red in the face (not sunburn) and they just seem to wilt. I don't react that immediately, but if I get too much sun, I can get tired, weak and my joints will hurt. It just makes my other symptoms flare. Doesn't always happen, but often.
"True" photosensitivity is a skin thing, and there's no missing that - sores, rashes, redness. That's the 'real-deal' and I think it happens pretty quickly when people who have that are exposed to sun.
"If you trust Google more than you trust your doctor than maybe it's time to switch doctors."