yes i do take a very low dose of prednisone right now. please tell your parents to let your sister take this medicine. it is literally a livesaver. yes it does have some side effects. one of the side effects that people hate the most is the weight gain. but she is young she'll drop that weight off as soon as she gets off the medicine. i had to be on prednisone at 14 and i was a freshman in high school. it was a high dose also so i gained a lot of weight. children can be soooo cruel! but it did save my life and i tell you as soon as i got off of it i was slim and trim again. do you know how many miligrams she's having to take and how many times a day? my iron level like hers drops from time to time also. i became anemic. but from what i understand this is pretty normal for lupus. she can take an iron supplement and be fine. and as soon as the lupus gets back under control she won't even need the iron supplement. yes i did party a lot in my early 20's. i wouldn't say that she can't drink alcohol EVER. she just really has to take care of herself. i lived near a college campus in my early 20's right in the middle of two fraternity houses so i was out drinking every night AND smoking tons of cigarettes and i just went totally wild for a few years. when i look back on it i would definately say i was rebelling. i say i am paying for it now because i truly believe in my heart if i would have kept all of that to a minimum i wouldn't have as many aches. i still strugle with cigarettes and starting that habit was a HUGE mistake for anyone but even moreso someone with lupus. my rheumy tells me there hasnt been a tie to cigarette smoking and lupus flares but i really do believe in my heart that there is. and in all my partying i barely got any sleep for being out so late and it was just an overall crazy life for a while there. i have since calmed down, i've gotten married and all of that is behind me. (except the cigarretes, i am still battling with that nasty habit) i am sooo glad your sister is responsible. kendra can have a very normal life as long as she keeps her visits with her doctor and takes care of herself. it's so funny when you say that she dosen't want to talk about it much because i was the same way at her age! i just didn't want to talk about it and i wanted it to disappear. in my case my mother just let me come to grips with it in my own due time. she will come around. don't press her about it. i went into remission by the time i was 16 and i stayed in remission for 10 years. 2 years ago i had a nasty flare that i've been trying to get completely under control ever since. two years ago is when i really started coming to grips with my illness! so give her time. she should definately be aware of her illness but i wouldn't force anything on her. i feel like i'm typing a book here (lol)so if you ever want to talk privately please email me at my msn address. it should be on my profile. otherwise responding here is just fine. i really hope this helps. keep me posted on how she's doing.
I was diagnosed with lupus at the age of 14. I am now 29.