There is no problem with your story hon. I could tell you some of the bouts on my life's journey as well. I was in constant pain from about 11 years old with Lupus Symptoms and my parents kept telling me that thems is just growing pains. We were very poor and not on medicade, so I did not get to see a doctor. I unfortunately turned to alcohol and street drugs big time. I unfortunately became an alcoholic as well as a drug addict. It was sad and well basically I saw that there was a real serious problem at the age of 19 and got into rehab into AA. It all helped tremendously. I too refuse to take pain meds, because of the problems I had in the past with them. I do take Prednisone from time to time as I am on it now. I am taking 15mg a day for a week due to a sinus and chest infection. Like I said in earlier posts I have had SLE most of my life and could not get the proper care until I was 36 and it nearly killed me when it started affecting my heart and lungs. I had inflamation of the heart muscle not the pericardium. It caused me to have a severe heart arythmia. That basically caused me to get diagnosed. I was on very high doses of Prednisone and put on Plaquenil and NSAIDs. My Rheumatologist started tapering the Prednisone down and I was off it by 6 months and that is when the Plaquenil kicked in and started working. He placed me on Imuran also, because I was still having flares, but not as severly. It is so sad, but you will find that there are a whole lot of us in the same boat that have suffered for years and years due to the doctors not knowing that much about Lupus and just how devestating this rotten illness is. I think that it is appalling the way the doctors act and treat people like they are hypochondriacs instead of really listening and doing all they can to figure out what is happening. I know I sure got sick of being blown off constantly and finally I had had enough of that when a doctor told me to go out and get drunk as there was nothing wrong with me and that I was needlessly worrying and stressing. I turned him into the AMA about that and he nealy lost his liscence. I learned to speak right up and let the doctor know in no uncertain terms that he would not get paid if he did not do as I wished etc. Please do see the Rheumatologist and make sure you have your medical history and symptoms and everything that you can think of listed and in order and do not let them bull you over. Good luck hon. keep us all posted as to how your appointment turns out ok. God Bless.
Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.
Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.