Welcome Joan. I was disagnosed a bit late in life, too (at 56) and have been living with the reality for a while now. I don't experience the eye symptoms you have, but have experienced mind-numbing fatigue, joint pain, pericarditis, pleurisy, neuropathy in my leg, and the classic malar rash. I also have fibromyalgia, Sjogren's Syndrome and Raynauds. Sjogren's is particularly common in women over 50, so it makes me wonder if some of your eye discomfort could be related to that. It's not unusual for someone to have more than one autoimmune disease. One of the meds that seems to help the fatigue level is Hydroxychloroquine (commonly, Plaquenil.) It takes a while to 'kick in'. Perhaps your doctor will consider prescribing that for your symptoms.
I have just 1 grandchild, but I truly understand what you mean about wanting the energy to enjoy your grandkids. They are such a joy! I always say my granddaughter is my reward for not killing her father when he was a teenager. :lol: :lol:
"If you trust Google more than you trust your doctor than maybe it's time to switch doctors."