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Thread: confused need help

  1. #1
    Join Date
    Mar 2004
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    Default confused need help

    i was diagnosed with lupus nephritis jan 2003, and have had drugs, chemo well you know the score.
    anyway saw my specialist last week and he told me everything was great so i was pleased.
    The confusing bit is that he told me i might not have lupus anymore, well i told him i didnt understand i thought you has lupus forever.
    he said that one in so many people, well it just dissappears, i said what remission, he said no just goes and wants to test this possability i am reallty confused. he said cause i never developed all the symptoms of lupus but i definately had it.
    please help im really confused

  2. #2
    Join Date
    Jan 2004
    Pacific Northwest
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    Hi! It sounds like we have some similarities. I have Type 4 Lupus Nephritis, but have been able to avoid the Cytoxan in favor of Cellcept so far. Actually, as of last week, it looks like I might be starting a remission. My Nephrologist and Rheumy have always referred to "remission", never Lupus going away, although I seem to have "renally exclusive Lupus" - no other typical Lupus symptoms, other than side effects to meds. Also, the Nephrologist was sure to tell me that he would be checking me every 6 months for the rest of my life, even if I do have a full remission, just to catch anything if it does come back. So, I'm not sure what your doc is talking about either - what kind of doc?

    So glad to hear you are better!


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