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Thread: BROWNEYEDGIRL NEEDS YOUR HELP & ADVICE, PLEASE

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    Default BROWNEYEDGIRL NEEDS YOUR HELP & ADVICE, PLEASE

    Hi Friends,

    Well, I've lost my job and I'm freaking out (with hives no less) and it has been suggested that I go on social security disability. If you know about this process, how long it takes, how sick do you have to be, and everything in between.

    I'm scared because I've been hospitalized 3 times in the last six months with blood clots in my lungs. I don't think I have the physical strength it takes to do anything, my cognitive function is severely impaired...and I'm feeling lost and on the verge of hopelessness (not my usual self as you can read).

    Any advice, or words of wisdom? My boss said that he didn't think I could do the job any longer.

    Tears running down my face,
    Browneyedgirl
    "I believe that friends are quiet angels who lift us to our feet when our wings have trouble remembering how to fly." - unknown

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    OHH BOWNEYEDGIRL,
    I can't help with the disability question, but know that I read your post, and I'll be thinking about you.
    Good luck, sweetie, and hang in there!
    Marla

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    Hi Browneyedgirl,

    I am so sorry to hear about your job. I was there last year; I was let go because of being "stressed and emotional" when projects were due. It didn't matter that I crawled from my bed to the bathroom for 3 days straight due to Lupus dle/sun exposure.

    My rhuemy at the time told me to work "part time"; so I found a part time position. It relieved the work related stress; but created a financial stress. It has unfortunately taken a financial toll on our family; although I physically can't work full time.

    I have checked into disability and was told from the date of filing a claim it takes 2 years. There is an association named NOSSCR with an 800 number that refers people to attorneys in your immediate area whom specialize. You could probably google NOSSCR and get the phone 800 number. The other option you may have is to check into State Disability and see if you are currently eligible for the maximum one year allowance. Again, I am so sorry.

    Everything happens for a reason; hang in there. You are in my thoughts and prayers. I hope the above information will help you out.

    Take care,

    Faith

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    I'm so sorry, Browneyedgirl! I'm no help either with the Social Security issue, I know Saysusie has good info on that. Sometimes it does take a long time, but some manage to get through the process in a matter of months.

    Did your company have Long Term Disability Insurance? Call your Human Resource department TODAY and ask about that - it could be that you could have some benefits coming in from that.

    Sending you prayers, thoughts, cyber-hugs and all the emotional support I can.

    hatlady
    ~"I find hope in the darkest of days, and focus in the brightest. I do not judge the universe." (Dalai Lama)

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    Hugs, big tight ones, Browneyedgirl. Being lost... words from us can be your bread crumbs...we will help you to find your way.

    Like the others I really have no info either on SSDI except...if denied, appeal, and hire an attorney. Or hire one from the get go. Disablity attorneys by law have a flat fee. If the case is approved they collect. If not, you owe nothing. The fee is collected from the retroactived SSDI date applied. Flat fee amount? I don't know. If approved you will get the remainder of the retroactived amount, backpay.

    Inform your doctors this is the path you decided to take. Ensure their exams notes are detailed to assist in a possible first attempt approval. I've read Lupus is on the list as a disease approved by SSA, so ensure that any small detail of your illness is not left out.

    Also, if classified as disabled by doctors, not SSA while owning a home you should be able to get a property tax break.

    Telephone, while being disabled I believe that service is free. Basic phone service.

    Electricity at a lower rate.

    This little bit I know comes from sister who also resides in Seattle area. She also was on some type of assistance. DSHS I believe and she was single. They provided her with rent assistance and food credit card.

    Also you may qualify for SSI.

    I am sure you've been to this site, but just in case...http://www.ssa.gov/d&s1.htm

    Don't be scared...soon this will pass too,
    Oluwa

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    Default Social Security Disability

    Brown-eyed Girl,
    I am so sorry to read about your current position. I was there exactly 4 years ago. I had worked for 6 months using my walker, and at times with a PICC line in my arm for IV infusions. Still, I was shocked, scared, and hurt when the time to quit came.
    Social Security Disability can be applied for ON LINE. You can begin the process TODAY. Even while checking with your company about disability (excellent suggestion). One word of caution: if you sit down to fill out the application, and you do not finish it, they will stop the on line process and send you papers in the mail to complete it. This may not be a problem for you, but I had huge, deep sores on my fingers (from Raynaud's), and my dominant (writing) hand was grossly swollen. Typing would have been much easier for me, but once I tired and exited the on line process, they would not let me resume it that way. I thought that was terribly unfair. Also, the suggestion of telling your doctors what you are doing and suggesting they document all the elements of your illess is EXCELLENT. My doctors did not do that (I just did not know to tell them), and they neglected to put a lot of things that would have helped me so much. The forms are many, and you will feel you have told them every thing about yourself from birth on (pretty much), by the time you finish, but you don't need an attorney, until denied (often on the first application). My attorney charged flat fees based on how far he had to go with appeals. The big thing is to get it started. They will not go back to when you first got sick, but only from the day you actually apply.
    There are lots of community agencies to help with everything from utilities, to food, clothing for the kids (if you have any), rental assistance, etc. Look for Salvation Army, Large Church Organizations, etc. Those two will know of other agencies to refer you to, also. The level of assistance is dependent on the income you have (from husband?), versus what your basic needs are. I am on huge amounts of medication with big dollars in co-pays, so that was a consideration.
    Keep a file of everything you do. Even if it is just a big brown envelope. Just something to keep all your stuff together. The process itself is so tiring, you don't need to be running around looking for stuff (another thing I learned the hard way).
    How long does it take? Well, the two years from application is actually quite accurate for many people, but you can speed the process up by making sure your medical records document the difficulties you have with pain, weakness, confusion, things that interfere with ability to get to a job and perform any kind of basic duties. That is where the hold up is generally found - the records are too sparce on data to back up the patient's claim. Don't despair, though. You have a lot of things in your favor going in - all these people are giving you great advice to get your process going!
    My heart goes out to you, as you go through this. It hurts in so many ways, I know, but you will eventually be in better shape, as the stress of all this begins to settle and allow your body to rest and recouperate.
    If I read correctly, you are in the Seattle region? If so, one place that I know has all sorts of assistance programs is the South King County Multi-Service Center. They are terribly hard to get in to see (you have to call numerous times a day, trying to get an appointment; the recording will tell you all the appointments are full, but one may open up an hour later - don't give up!). They can give assistance with power, gas, water, and some other things. Also, if you call the power company and tell them about your illness and losing your job, and that you are trying to get in to get assistance, they can work out your utility bill with you (my husband works for PSE - I know this from the inside - teehee). Don't pay things you don't have to! Save your money for the things that you can't get help with! Another big agency in this area is St. Vincent De Paul. You do not have to be Catholic. They help everyone they can, no matter the religious affiliation.
    I feel like I have rambled forever, but I have been where you are, and I wanted so badly to reach out to you and help you through this.
    Hope I have been of some help. You will be in my prayers.

    Susan

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    Hi Browneyedgirl,

    First, I am so sorry to hear that you are in such a scary situation! I know there are many of us who are struggling with the issue of how to work while being ill and how to manage finances while our incomes shrink because we can't work the hours we did when we were well.

    I am in the process right now of applying for Social Security Disability. You have already received lots of wonderful advice, but I would add two other items. First, go to the LFA website and purchase a book called "Disability Workbook for Social Security Applicants". This book is written by a disability attorney and explains the whole process, what "disabled" means, and what you will need to do to prove your disability to the Social Security Administration. Second, check your local yellow pages under Disability Advocates. I have one who is helping me complete the application and it has been a godsend. When you're sick to begin with, going through the application process can seem Herculean.

    Best wishes to you, fellow Lupie.

    mackie

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    Browneyedgirl,

    I am here with you in spirit, pryaing for you and feeling your hurt. You have always been such a great source of strength and encouragement that I wish I had some of your uplifting words to spew back to you. But, I can say, keep your head up, don't let go of your faith, and GOD does not make any mistakes, know that when HE closes one door, HE opens up another and puts a little something in the closet to go along with that

    It might just be that this is what you need to get your health back on track. Know that I am praying GOD to whisper in your ear that you are not alone and that this is in his plan. I also pray that you don't lose hope, your health improves and you spirit continue to soar with it.

    Stay strong and keep us posted so we know you're hanging in there. Cyber hugs and love you way.

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    oh girl try and stay strong we are all here for you and wish you lots of hugs and kisses all ova! muah

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    Browneyedgirl, you should be feeling lots and lots of warmth from the outpouring of support I've read here...and I want to add mine to that. Big, warm 'cyber-hugs' to you my friend. I'm so sorry - - yet another loss, and how hard they all are - how they all add up. You've received a lot of wonderful advice on how to proceed towards SSDI. I have a local support group in my area, and some members are on disability. Some were approved right away - no denials, no appeals needed. Some had to appeal and wait it out. The advice to find a disability advocate to help you complete the application is really sound. A friend of a friend is just such an advocate, and she has helped many people navigate those treacherous waters. I hope you can locate someone like that in your area.

    Once you've secured support from social security, you can think about whether or not you are able to work a little. One of the woman in my local support group has a willing employer who allows her to work 5 or 10 hours a week, when she can, which doesn't affect her SSDI. She still feels involved, and it gets her out of the house. Maybe you'll be able to find something like that - but probably not now. Now you'll need to rest and use your energy for the task at hand - the SSDI application process.

    Know that we're here for you - just as you've been for all of us so many, many times. We love your insightful and caring posts, Browneyedgirl, but now it's your turn to just let it out.

    Keep us posted, dear friend.
    "If you trust Google more than you trust your doctor than maybe it's time to switch doctors."

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