new and stressed
i am excited to find this site as I am having a really hard time adjusting to my lupus. Family is caring but not really supportive. I have an amazing 2 yr old daughter who right now is the reason i struggle out of bed in the morning. I am feeling really guilty because there are so many things that I would like to do with her, but sometimes I just dont have the energy. Right now I am in the midst of yet another flare, was recently hospitalized for a week ( they wanted to keep me longer, I couldnt stand to be away from my girl). I feel like I am going nowhere fast with this disease. I am sure the meds dont help me mentally (pred is killer for me), although i know they help phsically. I guess what I am looking or hoping for is any advice or support - especially how you handle being the parent of a toddler/small child while having this disease. Thanks for listening and I look forward to hearing from you.