Results 1 to 3 of 3

Thread: New member!

  1. #1
    Join Date
    Jan 2008
    Location
    Massachusetts
    Posts
    1
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default New member!

    HI: I'm new to posting! I joined to see what others are talking about with Lupus. I have had Raynaud's since my teens, then dry eye and dry mouth about 5 years ago and retroperitoneal lymphadenopathy (enlarged lymph nodes behind the abdomen). My ENT thinks it's Sjogren's but my blood tests can't prove anything.
    Without diagnoses, you're stuck! How can you say you have it without a Drs diagnosis? :cry:

  2. #2
    Join Date
    Dec 2007
    Location
    Edinburgh, Scotland
    Posts
    144
    Blog Entries
    1
    Thanks
    4
    Thanked 5 Times in 5 Posts

    Default

    Hey there and welcome to the forums!
    I'm sorry that you're having so much trouble getting a proper diagnosis, I don't have one myself yet but keep on pushing forwards towards one!
    There are lots of people here that can offer you good advice!
    Take care of yourself!
    Claire
    x
    Numpty:- (num-p-tee) dialect, chiefly Scot, ~n. 1. a bumbling fool: one who is intellectually challenged. 2. widely known in Scotland as an MSP (Member of Scottish Parliament).

  3. #3
    Join Date
    Sep 2006
    Location
    Minnesota
    Posts
    1,368
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default

    Welcome! Autoimmune diseases are a 'bear' to diagnose - sorry you're finding that out! I have Sjogren's, and Raynauds, too, as well as systemic lupus and fibromyalgia. Generally, the diagnosis for Sjogren's requires something like a lip biopsy (not particularly painful - just sounds creepy.) The docs will want to determine if you have primary Sjogren's (by itself) or secondary Sjogren's (with another autoimmune disease.) There's a good website with info about Sjogren's that you might find helpful. http://www.sjogrens.org/syndrome/ Glad you found us - there are always things to learn from this forum. I hope your docs can help you get some answers.
    "If you trust Google more than you trust your doctor than maybe it's time to switch doctors."

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •