Hello and welcome again AnneMarie;
First, here is the correct spelling and a brief explanation of the diseases you mentioned:
1) Sjogren's Syndrome:
Sjogren's syndrome is a chronic, inflammatory, autoimmune disorder characterized by dry mouth (xerostomia) and dry eye (keratoconjuctivitis sicca) which are the two primary clinical features of this disorder. There are two distinct forms of Sjogren's syndrome: primary (occuring by itself) and secondary Sjogren's (occuring in conjunction with another autoimmune disorder such as rheumatoid arthritis, systemic lupus erythematosus, or scleroderma).
Scleroderma is a chronic disease which occurs due to excessive deposits of collagen in the skin or other organs. The localized type of the disease, while disabling, tends not to be fatal. However, diffuse scleroderma or systemic sclerosis, the generalized type of the disease, can be fatal as a result of heart, kidney, lung or intestinal damage.
It is entirely possible to continue with those activities that you love, so long as you take proper precautions. Since exposure to the sun is our worst enemies, you will have to take extreme precautions in order for you to continue the outdoor activities that you love. Yes, there is protective clothing, makeup, sunscreens etc., but even with these precautions, you still must limit the amount of time that you are in the sun.
In attempting to stay within holistic treatments, you should be aware of the fact that there are many herbal medications that will exacerbate the disease (cause flare-ups and/or make flare-ups last longer with more symptoms). So, be very, very careful with any herbal medications and/or supplements.
Yes, you will need to alter your life....especially if you want to continue to do the things that you love. You may not boat as often as you once did, but you can still boat! You may not stay outdoors as long or as often as you once did, but you can still go outdoors. The primary focus of treatment in life-style changes in Lupus is to avoid a flare-up of the disease. As long as you keep this in mind, you could do quite well!
In the meantime, we are all here to help you as much as we can; to provide answers, information, support and comfort when you need it!!
I wish you the very best
Peace and Blessings
Look For The Good and Praise It!