You have such wisdom for your age; I too have finally begun to accept lupus as a "gift"....I'm not quite at the blessing stage yet (smiling). Like you, I loved my hair...and I have lost it all on several occasions. The scabs and scars of discoid lupus can be very difficult to accept...but that's where I had decided to trust God and let my personality shine though my baldness.
I have suffered kidney failure several times, I am at stage 4 of lupus nephritis. I see a nehprologist regularly to monitor my kidney's function. Drink lots and lots and lots and lots of water....it is crucial to your kidneys!!
I have brain, heart, lung, kidney, and skin involvement with my lupus. Like you, I have had pneumonia, pericarditis, cerebritis, and now discoid. It pretty much sucks....but I figured that when I was bald I would be keeping some poor hatmaker in business...and I bought fun hats, silly hats, sophisticated hats, gardening hats....I have as many hats as Imelda Marcos had shoes (laughing out loud). The musician Seal had been interviewed on Oprah and asked about his face....and I loved his response...."But God gave me this voice". aaaahhh, what a refreshing answer!! Wasn't that great....and he's married to one of the most beautiful women in the world....Heidi Klum. Let your heart shine, may your spirit soar and may your hopes rise up to help you find your calling in life.
God Bless and Much Love,
"I believe that friends are quiet angels who lift us to our feet when our wings have trouble remembering how to fly." - unknown