Wow - that is SOOOO frustrating! You are right to look for help from another doctor. Someone who understands autoimmine diseases is the key - the rheumatologist could be that person. I hope so. When I look back over the years (and the gigantic size of my medical file!) I realize I've been dealing with this for a long, long time. If I hadn't ended up in the hospital with a womping big case of unresponsible pericarditis and had a sharp young doctor who spotted an old record showing an elevated ANA, I might still be undiagnosed. We shouldn't have to work that hard to get the care we need. There just needs to be more recognition of the disease in the general practice world. Sigh.... where's Dr. House when we need him? :lol:
"If you trust Google more than you trust your doctor than maybe it's time to switch doctors."