I tried to respond to your e-mail, but your account would not accept my e-mail!
Have you tried the Lupus Foundation of America's website?? They are a wealth of information and they also have links to many other sources of information. Also, I don't know where you are in California, but try to see if there is a Lupus Foundation in your area. They can direct you to support groups close to you and give you information on where to find help.
I think that it is wonderful of you to try to provide information for her and for her family. Educating yourself is one of the smartest things you can do with this disease.
Let me know how your search goes..write to me as often as you need and I will do all that I can to help you!
Peace and Blessings