Hello and welcome :lol:
What you describe has happened to many of us. As you will read in these forums, it can sometimes take up to a year before we get a definite diagnosis and some of us have never gotten a definite diagnosis (other than undifferentiated connective tissue disease [UCTD]). This can happen when our lab results do not confirm any specific disease because some are negative while others are positive and then they change (the negatives become positive and the positives become negative). We only know that we are suffering from some form of auto-immune/connective tissue disease.
The diagnostic process is lengthy and frustrating, to say the least. A positive ANA can indicate many things and is not a marker for Lupus. Along with a positive ANA, doctors need to confirm other lab results as well as symptoms. Many of the auto-immune/connective tissue diseases also have a positive ANA.
So, you are not alone. Also, many of us have also been diagnosed with Fibromyalgia along with our Lupus...so here again, you are not alone!
I am happy that the Plaquenil is giving you some relief. Perhaps you and your doctor could discuss the use of immune suppressants (like methotrexate) or the use of regular corticosteroids (like Prednisone) in order to manage your other symptoms. Elsewhere on these forums are explanations for these drugs. However, if you have any questions about them or need any further information, we are here to help you as much as we can!
Peace and Blessings
Look For The Good and Praise It!