I agree with you a lot. I have had Lupus they believe since the age of 5 years old, however I did not get diagnosed until I was 36 years old. It is a hard illness to live with, but I look at it this way, I did not ask for this disease, but since I have to have it, I will try to do the best that I can to live as comfortable as possible. I just try to enjoy my life. I may have Lupus, but the Lupus does not define who I am as a person. I believe very much in God and I believe that what comes after this life is beautiful where nobody is sick. I always try to help people as much as I can and I try to listen to others even the folks that don't have Lupus, but have other illnesses that afflict them. I don't know what else to say.
Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.
Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.