Lupus is not something we "get", like a cold or the flu. So, I'm not sure what you mean when you say that the way that other people get it doesn't pertain to you. The cause of Lupus is still unknown (and that is why there is no cure). While the exact cause for Lupus is unknown, it does appears that there is an inherited predisposition to develop autoimmune disease in many cases (this does not necessarily have to be your immediate family, it could be inheritied from generations ago and/or from distant relatives). Maybe someone has had rheumatoid arthritis, or someone has had diabetes, or multiple sclerosis, or Sjorgen's Syndrome, or chron's disease...I could go on, but you get my drift.
Also, there are environmental factors involved. Some environmental factors which may trigger (meaning, it is was always in us, but something caused it to surface) the disease include infections, antibiotics (especially those in the sulfa and penicillin groups), ultraviolet light, extreme stress, certain drugs, and hormones. There is no known gene or genes which are thought to cause the illness. There are recent discoveries of a gene on chromosome 1 which is associated with lupus in certain families. Previously, genes on chromosome 6 called "immune response genes" were also associated with the disease. Only 10 percent of lupus patients actually have a close relative (parent or sibling) who already has or may develop lupus (90% of us don't have a close relative who has Lupus!). Statistics show that only about five percent of the children born to individuals with lupus will develop the illness!
When Lupus attacks our organs, we may not always immediately feel the results of that attack. Generally they show up in our lab work. The attacks usually cause inflammation of some kind in our organs which lead to serious complications. Some of these attacks on our organs can be life-threatening and increasing steroids and immunosuppresive drugs is the best way to control the inflammation in order to get the organs back to normal functioning. It is unfortunate that these drugs have side-effects that make us feel badly, but not taking them can put you in grave danger of losing that organ and/or your life.
Because we do not feel the results that we want from some drugs does not mean that they were useless. There is no cure for Lupus. Therefore, there is no drug that is going to make the disease go away nor will any one drug get rid of all symptoms permanently. It takes several medications working together to provide relief from symptoms and to try to reverse and/or stop damage to our organs.
I would suggest that you try to learn as much as you can about Lupus, how it affects each person differently and how it affects you specifically. Learn what the symptoms of Lupus are and what medications are used for each of those symptoms. Also, learn about the other diseases and illnesses that we can also develop along with Lupus (almost all of us have Lupus along with other diseases/illnesses - such as Fibromyalgia, Sjorgen's Syndrome, Pericarditis, Pulmonary Hypertension, etc.). Learn about the symptoms of those diseases and illnesses as well as the medications used to treat those symptoms. Once you begin to educate yourself, you will not be so confused about your symptoms, your medications or your prognosis.
Peace and Blessings
Look For The Good and Praise It!