Hi, Cranbrycloud. You are to be congratulated for being such a gracious host to those 9 people!! What a lot of work (I know!!) and when you don't feel well, so much more effort has to go into it. It must've felt good to see the results, and to watch everyone enjoy it. I'm so sorry you didn't get to enjoy the next day, too. It IS sad that someone didn't think about your needs. Are they aware of your illness - have you explained it to them? I know sometimes it's hard to explain, and sometimes you just get tired of talking about it - or even thinking about it. You did the right thing for your body - you're learning to listen to what it has to tell you. That's so important in managing your illness. Life with lupus can be full of wonderful things - just like life without lupus. But, there are changes and choices must be made sometimes. This might be a good time to have a talk with your boyfriend about how you felt. I hope you'll have a better day tomorrow. Don't feel badly about coming here to vent, complain, cry...whatever you need to do. We've all done it, and continue to do it when we need to. Someday you'll be just the person to offer support to someone else here (or in your own community.) No need to apologize for needing support yourself right now. Take care, Cranbrycloud.
"If you trust Google more than you trust your doctor than maybe it's time to switch doctors."