I hope I'm posting this in the right area.
I'll give you a bit of background: I'm 44 years old, married 25 years and basically live a very calm, happy life. I have been fighting symptoms for 3 years. Before this started, I never knew a sick day and could run cirlces around anyone!! And then, something hit me like a ton of bricks. It started with EXTREME fatigue. I spent three months doing nothing but coming home from work and going to bed. It was December, and I did not even put up a Christmas tree or do any shopping. Then it got to the point that I did not feel like I had the energy to lift my arms.
I went to my new doctor. This is where I was at a huge disadvantage. My primary doc of 20 years had just passed away with cancer. My meer presence would have alarmed him, as he knew me well and I NEVER go to the doctor except for my routine exams. So, I had a new doc who did not even know my name....
Blood tests were ran and all came back fine except for an elevated ANA count (1:160). They repeated the ANA test to make sure it was not an error and again, it was positive. She ran the further tests that came back okay and pretty much dismissed it. After about a month, I started feeling better. Months later I started developing rashes on my chest and neck, fevers, fatigue and painful, swollen joints. She did another round of blood tests and my ANA count was higher (1:320). She followed up with additional blood tests and sent me to a rheumatologist. The rheumy blew me off and said I was fine.
I have not been back to the doctor in about a year, and I can tell you the that this IS NOT NORMAL for me. I know my body, and I know how I feel. Before I even went to the doctor the first time, I told my husband that at times, I feel like every cell in my body is sick. It truly feels like my body is waging war on itself.
Thankfully, the past four months I have been having pretty good days. But now, I feel it again, and this time, I have pain in my upper back around my lungs. It may be time for me to find a different doctor.
Thanks for your time!