Fatigue during flare ups only?
I'm 22 years old and was diagnosed when I was 16. In terms of how Lupus has affected me, its my kidneys. Although thankfully I'm in remission right now. I've taken cyclosporin (is that how you spell it?) before and now I'm taking a low dosage of predisone and plaquenil.
I'm new to this forum and am hoping to talk to some fellow Lupies.
What I'm wondering is that for those who are in remission, do you get "fatigue attacks"? I'm always a little unsure whether I'm just feeling tired or I'm actually "clinically fatigued". Do you just get fatigued when you get flare ups? I've told my specialist about being really tired sometimes but she kinda just brushed it off without explaining the reason. Am I just imagining this? My family doesn't understand and they think that I'm just being lazy when I sleep a lot. So my question is, can you get fatigued when you are in remission?
Also, for those who get rashes on your face, are they itchy? And how do the doctors know if its from Lupus and not from having some allergic reaction to something? Finally, what do your doctors give you for the rashes?
Thanks and hope to hear from you soon!
I, like you, am in remission and YES, I experience chronic fatigue. However, my fatigue is almost constant and not just during flares. Even though I am in remission, I still present symptoms. I am just able to control them without much medication.
Fatigue is the hardest symptom of Lupus for friends and family to understand. It cannot be seen and therefore is greatly misunderstood and hard to explain. Your family's reactions are typical because they need to be educated about how fatigue affects us. There is some information regarding fatigue on the Lupus Symptoms forum in this site. You might also try going to the Lupus Foundation of America's website and downloading information regarding fatigue and giving it to your family to read so that they can learn that you ARE NOT LAZY!! You are truly fatigued and you NEED TO REST AND TO SLEEP!!!
Education is the best defense that you have. Educate yourself and your family about your disease, its symptoms and treatments!!
Best of Luck!!