Welcome to our family. I am sorry to hear that you are having so much trouble with your Lupus. We are all happy that you are alive.
There are some here who have successfully applied for and receive disability. I would think that, given the fact that you are on a wait list for a transplant, that you might be able to qualify for disability. Have you given this any thought?
You are not alone. There will always be someone here to help you, to answer your questions and to provide information. Also, we are here to just listen when you need to talk.
I wish you the very best!
Peace and Blessings
Look For The Good and Praise It!