You are not alone with your rashes and your need for lots of sleep.
I find it hard to explain to friends that sometimes I have to cancel at the last minute because I am ill. I am always making excuses why I can't go out.
I sleep a lot and need a quiet life in order to take care of my self.
Life is harder when you have lupus and you are sore and ache all over.
How do I cope?
I found comfort in a wonderful inner life, where I read for long hours, paint and am very creative. This is now bringing me income.
I have become happy with my quiet comfortable life with not too much stress. It's easier than trying to be like the rest of the world that races around in a rush all of the time. The world is too stressful for me.
I feel better living a quieter life, eating very healthy and getting lots of rest. Minimal social life.
All the best. Barbara Jean