Hello Perfectlyimperfect; :lol:
Welcome to our family. I know just what you mean by putting on a brave face. Lupus is a very difficult disease to describe to someone who knows nothing about it. The disease never affects any two persons in the same way and the disease changes in us. There is no way of predicting what the disease will do or how it will affect us.
You say that you have been told that you possibly have Lupus. What did your doctors base this upon? As of now, how has the disease affected you? Do you have any organ involvement? Have your doctors started you on any medications?
You will most certainly find people here who not only understand what you are going through, but who have probably been there themselves. Also, everyone here is very supportive, comforting, informative and caring. You've come to the right place to find people who understand.
I'm glad that you decided to join us :lol:
Peace and Blessings
Look For The Good and Praise It!