Hello Lars :lol:
welcome to our family where no one will dismiss your symptoms and everyone will understand what you are going through and how you feel. Most of us realize that we were suffering from Lupus symptoms for many years before we finally got diagnosed. Therefore, we can identify with being called hypochondriacs and being told that we were just imagining our aches and pains and being told that we needed to see a psychiatrist because there was something wrong with us, emotionally, if we felt we needed to get attention by making up so many aches and pains!
Here, you will definitely find people to talk to, get answers from, who will give you support, comfort and understanding when you need it and will be here to listen if you just want to talk!
You are right in saying that you are very lucky to have two wonderful, healthy children with this disease. You now need to find a good rheumatologist who fits with you! In the meantime, come to us with questions and concerns and we will do our very best to provide answers etc.
Be careful, when trying lifestyle remedies, to avoid a lot of herbal medications. Many herbal medications can actually aggravate Lupus symptoms and can cause us to flare-up. Otherwise, lifestyle changes are one of the most important ways that we can attempt to manage our disease. You will need to find a balance between exercise and rest because both are important. Also, avoid the sun and UV rays or hallogen lights. Keep your body covered if you must be in the sun. Learn to limit yourself so that you do not overdo and, most importantly, avoid stress!! Stress is our worst enemy as it can cause so many dysfunctions that will make us flare-up and/or make our flare-ups worse!
I am happy that you joined us and I am sure you will find friendly, kind, caring and supportive people here :lol:
Peace and Blessings
Look For The Good and Praise It!