My doctor suspects Lupus...
I have read some of your posts and found them to be quite informative. It is nice to see such an encouraging group in this forum.
I have not been diagnosed with Lupus, but my doctor is sending me to a specialist on April 12th because she suspects Lupus. I'm not sure how I feel about this.
I don't really know why she (my doctor) is sending me to a specialist, she did initial bloodwork that came out negative for ANA. Wouldn't that rule out Lupus?
I have had a rash on my face for 2 years now, it is on both cheeks as well as my nose...however it is much redder and more affected on one side than the other. Another symptom is that sometimes (but not always), I get so cold, even in temperate or warm climate conditions...especially my hands and feet. Also, I began getting migraines at about the same time my rash appeared, although they seem to have subsided almost completely.
I do not have joint pain, that I'm aware of...but my pain tolerance is really high. A year and a half ago I badly fractured my tailbone but didn't see a doctor for almost a week because I thought it was just a bruising that would go away on its own...I even taught 2 dance classes that week. Even when I was young (13 years old) I once danced in a competition on a severely sprained ankle...yeah I felt it, but I tend to easily ignore most types of pain. The only time I had joint pain that I can remember was about 3 weeks ago all through one night my hips and knees were driving me crazy...but that doesn't exactly mean anything was wrong with me, it was only that night.
My husband thought I was losing too much hair about a year ago, he wanted me to see a doctor about it, but I just waited it out and I think it's okay now. I just assumed my hair loss was due to stress and aging (I'm now only 30 though).
I have heard that autoimmune diseases are "familiar"...not genetic, but can run in families. My mom has Multiple Sclerosis, and my aunt on my dad's side has SLE Lupus.
Am I in denial, or am I being reasonable that I probably don't have Lupus? I guess I think of my aunt, and she is so sick...I do not feel sick at all really...just inconvenienced and a bit embarassed of the rash that won't go away.
Should I be keeping a health/symptom journal and writing down every ache and pain...or is that going overboard? I'm just not sure what to think or do. Are there certain "signature" signs or symptoms that I should be watching for and noting? Another problem is that I quite literally have a poor memory. I am truly apt to have a specific symptom, and yet forget about it within a few days...which doesn't help when my doctor asks me how I'm doing. I'll just say "I feel fine" (and then I'll wonder why I bothered making this appointment) :-D .