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Thread: SHORTNESS OF BREATH

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    Default SHORTNESS OF BREATH

    I have a ? I have SLE and have chronic shortness of breath and chest pain that comes and goes it is not sharp but suttle. This has been going on since 3/07 and has been getting slightly worse. I've been using an inhaler Advair which has steroid in it. It helps somewhat but at times I'm still try to gasp for air just when sitting here at my desk. I've seen a cardiologist who said my echo came out normal and also said my lungs sounded clear but could tell I was having a hard time breathing. I've looked several things up and what I find the closest dx of is Pulmonary effusion. Does this sound possible. :?: I've been referred back to my pulmonologist who initially diagnosed me with asthma but my cardio. said it did not sound like asthma, in fact my Rheumie even said my lungs sounded clear but could tell I was trying to breathe :?: Thanks for your reply.

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    Have they ever done a pulmonary function test? That might help them pinpoint what's going on.
    "If you trust Google more than you trust your doctor than maybe it's time to switch doctors."

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    NO BUT MY PULMON. ORDERED ONE TODAY IF MY INSURANCE APPRVS IT. HE SAID THE LUPUS MIGHT BE AFFECTING MY LUNGS.

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    Hi Morning Star...

    Mine goes like this...

    I have left chest pain, coupled with back pain, left shoulder blade, shortness of breath prior I also had arm pain and intense pain under my sternum. I was thinking, oh dear another herniated disk...

    My Rheumatologist diagnosed Pleurisy, prescribed Naproxen and Protonix for my GERD.

    My PCP isn't certain it is that. He feels it maybe a few things going on inside. Part of the pain was from my GERD. Fixed that part with Protonix. I am thankful for that pill.

    My PCP also injected cortisone into my rotary cuff for the arm pain. It work for my arm but not that left chest pain and back. I also have a order for a chest xray, which I will have done tomorrow.

    But anyway..I am wondering if this is what I have and you too.. Pericarditis

    It reads...If you have acute pericarditis, the most common symptom is sharp, stabbing chest pain behind the breastbone or in the left side of your chest. However, some people with acute pericarditis describe their chest pain as dull, achy or pressure-like instead, and of varying intensity. The sharp pain may travel into your left shoulder and neck. It often intensifies when you lie down or inhale deeply. Sitting up and leaning forward can often ease the pain. At times, it may be difficult to distinguish pericardial pain from the pain that occurs with a heart attack.

    Other signs and symptoms often associated with pericarditis include:

    Shortness of breath when reclining
    Low-grade fever
    An overall sense of weakness, fatigue or feeling sick
    Dry cough
    Abdominal or leg swelling

    Humm..maybe...maybe not? Whacha think?
    Oluwa

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    I'm not sure wouldn't the Echo show whether or not I had pericarditis or not. I just saw my pulmonologist and he has ordered a Pulmonary Function Test and said the the lupus may have affected my lungs, my primary symptoms are SOB, even when sitting, worse when exerting and tightness in chest and some pain but not bad. It's just bothersome to be SOB all the time. He did say I do have asthma but would you be SOB all the time even with inhalers with ashtma? This is so confusing, I hope they figure it out soon, it's been going on for about a year.

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    Hello Morning Star,

    Oops...Yes, you are right it should display it. D'oh me! I do hope they find out soon for you.

    My shortness comes and go, maybe I have perdicardium. I get confused too, one said pleurisy the other not. I trust my PCP more than my Rheumatologist because he has given me this blank stare on a few ocassions and he instructed me to stop taking Protonix. Which he doesn't recall. I was in terrible pain for months. Believing oh, swell..life with Lupus.

    My GERD got worse than ever. Since being back on Protonix..it wasn't life with Lupus afterall, that I had to grin and bare it. If I had to, I think I would have gone totally stark raving mad.

    Did your insurance approve it...and when are you scheduled? Do let us know the results.

    Hope you find your wellness soon.
    Oluwa

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    I have just went through a series of tests with my pulmonary specialist. I had been dealing with SOB(upon exertion) for about a year now. After I read in the Lupus book, by Dr. Daniel Wallace, the seven different things that Lupus can cause with the lungs I decided it was time I get busy finding out what is wrong. She ordered a chest x-ray and the pulmonary function tests. At the office visit she pretty well told me that it was interstitial lung disease from the lupus. The tissue becomes inflammed and does not heal normal and produces more tissue, then turns to scar tissue, thus making that part of the lung useless. She then ordered the heart echo and ultra-sound, and CT scan of the lungs. That confirmed what she thought. I repeat all this 6 weeks after the first tests to see if she can determine the speed of the progression. I am on 10mgs of prednisone she put me on for now. She calls that a low dose, I don't. She thinks she may jack up the amount of prednisone. Nothing stops the inflammation, a miracle from God can. Of course they think the meds can slow down the progression. :lol: I have been diagnosed for 12 years now and never had any organ involvment yet. That has been a blessing from God. I will be praying for you, SOB is not a fun thing. We must trust God, one day at a time. Hope this helps you out. Mel
    Mel Ting

    "If you were born without wings, do nothing to prevent their growth."

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    Thanks so much for your reply. I'm scheduled next week for my PFT Test. I was kinda thinking that I may have Interstitial Lung Disease or Pulmonary Fibrosis. Guess I'll find out soon, though, I hate to hear of you having this problem. God can work miracles. I sometimes feel as though I may be dying because of my breathing, just sleeping is hard if I don't use my inhaler before I go to bed I wake up struggling to breathe not wheezing just tightness and SOB. That's one thing I noticed though is my Advair does help probably because it has a steroid in it. My first noticable symptoms was 5 yrs ago after I had my daughter I had terrible joint pain went the to Dr and was told nothing was wrong after doing some lab. So I waited and after several months it's went away and didn't reappear until 2 years ago after I had a car accident. Well thanks for your reply and God be with you.

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    Well my shortness of breath has been still ongoing and still no one can find out what's going on, been to the ER, he thinks I've got ILD but since my chest xray/lab and ekg are all normal he couldn't do much but give me more steroids, that was thursday so by Monday gasping again, rheumie gave me another shot of steroids told me to find another pulmonologist which I have but cannot get into until 7/31, ordered a CT Scan and it came back normal, had another PFT test and the guy who did it said it didn't look like it was much worse than the one I had 6 mos ago. I'm at a loss, what is causing me to be soooo SOB???? Guess I'll have to wait and see this new Pulmon. although since I've been put on a steady course of steroids 20mgs and then taper down, it's been alot easier breathing, so I've obviously got some inflamm going on other than just asthma.....??? :? :? :?

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    Hi Morning Star...

    May there is something going on with your diaphragm...thoracic diaphragm...not the gadget.

    Since it controls our breathing....maybe...a thought.

    Or are you an anemiec?

    Swollen limbs and ankles....congestive heart failure...shortness of breath my auntie had that...hummm...cardio would have found that..

    Something in the air, in the ventilation? Is it all the time, in certain areas, workplace, home, outside?

    I hope they find out the cause, as that can be alarming and for all this time, Morning Glory,
    Hugs..
    Oluwa
    I have Lupus. So *^#@! what.

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