Hi Julianne; :lol:
Welcome to our family. Since you say that you experience pain in your hands etc when it is cold, I want to talk to you about Raynaud's Syndrome. Does the color of your skin also change? Many of us with Lupus also suffer from Raynaud's Syndrome. Raynaud's syndrome is a disorder that affects the blood vessels in the fingers, toes, ears, and nose. This disorder is characterized by episodic attacks, called vasospastic attacks, that cause the blood vessels in the fingers and toes to constrict. Raynaud's syndrome can occur on its own, or it can be secondary to another condition such as scleroderma and Lupus. For most people, an attack is usually triggered by exposure to cold or emotional stress. Once the attack begins, a person may experience three phases of skin color changes (white, blue, and red) in the fingers or toes. The order of the changes of color is not the same for all people, and not everyone has all three colors.
Also, pain in lupus is not always due to inflammation. Many of us suffer from painful, burning muscles and aches which complicate or co-exist with our Lupus and which can be caused by the following:
fibromyalgia, avascular necrosis of bone, bursitis and tendonitis, other types of arthritis, or infection. The most common cause of these aches, pains, burning and tingling sensations is Fibromyalgia. Fibromyalgia is a chronic disorder that over 30% of lupus patients also suffer with. Its characteristics include: widespread pain, burning and tingling in the muscles and the joints, fatigue, generalized weakness, non-restful sleep.
Lupus and fibromyalgia may look similar on the surface, but in fact they are very different disorders. Unlike lupus, fibromyalgia is not an autoimmune disorder and does not cause any inflammation. It also does not interfere with organ function. However, people with lupus often develop fibromyalgia ( it is very rare for fibromyalgia sufferers to develop lupus).
The confusion between lupus and fibromyalgia may be due to the fact that many of their symptoms are so similar. Like fibromyalgia, lupus symptoms tend to come and go, and can take the form of sudden flare-ups. Like fibromyalgia, lupus is also associated with extreme fatigue, muscle pain, and circulatory disorders. In fact, as I've mentioned, up to 30% of lupus sufferers develop fibromyalgia syndrome after they have been diagnosed. Lupus and fibromyalgia are both rheumatic conditions. Fibromyalgia is a type of soft tissue or muscular rheumatism and does not cause the inflammation, joint damage or deformities that can be caused by Lupus.
Diagnosis of fibromyalgia requires fulfillment of all three major criteria and four or more minor criteria listed below:
1. Generalized aches or stiffness of at least three anatomical sites for at least three months
2. Six or more typical, reproducible tender points
3. Exclusion of other disorders that can cause similar symptoms
1. Generalized fatigue
2. Chronic headache
3. Sleep disturbance
4. Neurological and psychological complaints
5. Joint swelling
6. Numbing or tingling sensations
7. Irritable bowel syndrome
8. Variation of symptoms in relation to activity, stress, and weather changes.
Since it appears that you have some of the major and minor criteria, perhaps you should ask your husband and your doctor about this possibility and/or the possibility of Raynaud's. Please let us know what you find out and remember, you are not alone and we are here to help you in any way that we can.
Peace and Blessings
Look For The Good and Praise It!