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Thread: concerned about ILoveHistory

  1. #11
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    Hi Missy!

    Thank you SO much for your very kind words and support!

    Keep well and God bless!

  2. #12
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    Welcome back ILoveHistory :lol:
    I'm sorry it has taken so long to respond to you. I am so sorry to hear about the additional complications to your health and you impending hospital stay. I, too, hope that you do not have to spend your birthday in the hospital. With reference to your constant pain and the fact that your doctor is out of town: Yes, I do think that you should make an appointment to see someone in the meantime. Especially since Tramadol is doing nothing for your pain and that is a pretty heavy-duty pain killer.
    Do not beat yourself up about not mentioning your suspicions about Wilson's Disease. We all have had suspicions of one type or another, but we are so gun shy around doctors (as a result of being told too many times that it is all in our heads and that there was nothing physically wrong with us) and we don't want to be perceived as whiners or hypochondriacs. At least you have a diagnosis, your doctors are doing the appropriate tests and they are making arrangements for treatment (albeit - stuck in the hospital for a while). Make sure that you take your lap top with you (if there is internet access) so that we can continue to be there for you and continue to give you support and comfort!
    Please, please, continue to take care of yourself. You are important to us and I will keep you in my prayers!

    Peace and Blessings
    Saysusie
    Look For The Good and Praise It!

  3. #13
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    Hi Saysusie!

    No worries!

    Thank you SO very, very much for all of your kind words, advice and support! I appreciate it SO much!

    Unfortunately, I don't have a laptop! :cry: Just the family computer in the study...

    I am going to attempt school today (Monday), especially as I have a very important English Oral to do. It's 01:14 a.m. here, but I am still up, due to pain! I've got my period - today (Monday) is day three and even though I'm on Yasmin and am taking Synflex for cramps, I have been in an unusual amount of pain during this period. I had to get up at 05:00 a.m. yesterday (Sunday) to run a hot bath and take some more Synflex because of the pain! This is unusual for me. Before the Yasmin, I used to collapse from the pain, but the Yasmin has been a lifesaver for me and I usually have very little period pain now that I'm on it, so I don't understand why I suddenly have such annoying pain this time? :? The Gynae. is pretty sure that I have Endometriosis; could that be causing this pain even though I am on the pill?

    I am seeing my Urologist on Tuesday at 14:00 about my urinary incontinence (yes, my G.P. finally referred me, but even if he didn't, eventually I would have gone anyway). My G.P. said that they have to do certain tests. Do you know what type of tests they usually do? What I have looked up on the Internet sounds painful! Do you know if these tests are painful?

    I am seeing my Dermatologist on Wednesday at 12:40 due to my hair continuously falling out in big clumps. Do you know what sort of tests the Dermatologist is likely to do for this sort of problem?

    Thanks again, keep well and God bless!

  4. #14
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    Hi ILoveHistory,
    Yes, Endometriosis can still cause pain, even though you are taking the pill to try to control it. My daughter just went through surgery this summer for it. She's seeing a gynecologic endocrinologist.
    As for the MRI, the small dark place and the noise doesn't really bother me.
    As for that Botox thing, I have no idea. He says that it will only take 5 minutes and that I can drive myself home, so I'm hoping that it won't be too bad.
    I think that the jury is still out about having SLE. I have a malar rash and chest pains and I definitely have bursitis, so I'm still wondering.
    The ataxia seems to be mostly affecting my nerves. I have peripheral neuropathy in the feet and toes and unpredictable spasms, mostly in my legs, and mostly late at night. It seems to be starting in my hands, too, since I couldn't feel the tuning fork on my fingers. I have noticed that I've been dropping things a lot lately, and I often have a difficult time keeping hold of a pen when writing.
    Arthritis, Alzheimer's, Parkinson's and other palsies have run in my mother's side of the family for a few generations. Her mother's family came from Scotland, and were the MacWilliams family. Grandma married a full-blooded Cherokee Indian, but this time, they can't blame the big Indian for it!!
    Take good care of you, and I hope that you have a great birthday in spite of it all! Are you going to be 18? Are you a senior this year? I just celebrated my 50th on Sept. 3; my son will be 25 on Sept. 16 and my hubby will be 51 on Sept. 24. Have you noticed that September birthdays are approximately 9 months after the Christmas holidays?? LOL!
    Keep in touch,
    Marla

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    Hi Magistramarla!

    Thanks for the information about the Endometriosis. I'm sorry to hear that your daughter had to have surgery and I sincerely hope that the surgery helps her.

    I'm so sorry to hear about your nerve problems. I have Peripheral Neuropathy too and it's awful! Has your Neurologist given you any medication for it?

    Do you have seizures too, if you don't mind me asking? If so, which types?

    I drop things a lot too; I think mine is because the reflexes in my arms often disappear. :? Tonight, I dropped the cup of tea I was making my mom.

    No, I'm going to be seventeen. I'm in Grade Eleven; I think that's 'Junior' in the U.S.A. HAPPY BELATED BIRTHDAY! :new-bday: :bday:

    I definitely don't suffer from Claustrophobia, so the enclosed space in the M.R.I. Scanner really doesn't bother me, but the noise! When I went, they were SO strict about the scan! They made me strip completely and wear only a hospital gown (i.e. I wasn't even allowed to wear my panties! :shock! I feel very proud and patriotic because it was a South African who invented the M.R.I. Scanner! :lol: 8) The radiologists are such liars! They say: "This part will last five minutes", meanwhile, it's fifteen minutes! I had eight pictures done of my brain - 8 multiplied by 5 equals forty and I was in there for an hour and forty-five minutes! :roll:

    Keep well and God bless!

  6. #16
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    No seizures, just spasms - luck for me, I suppose. The only meds they have me on right now is a NSAID. I'll see if that changes after the testing is done!
    The doc wants the MRI to be both brain & spine, so I may be in for a long one this time, too - Whoopee!
    Marla

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    Nice to have you back, Ilovehistory! I'm sorry to hear that the doctors keep uncovering more trouble for you. Hope the pending diagnosis will lead to some really successful treatments.

    If you could do anything you wanted on your birthday, what would it be? (We can't always get what we wish for, but it doesn't hurt to imagine it anyway!)

    Please keep us posted on all of your tests. We miss you when you're not around!

    Jody
    "If you trust Google more than you trust your doctor than maybe it's time to switch doctors."

  8. #18
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    Hi!

    Magistramarla: Is the N.S.A.I.D. helping you at all? Good luck with the M.R.I. Scan!

    Mnjodette: Thank you SO much for your kind words and support! I've been missing all of you a lot too!

    Well, you're going to think that I'm mad, but I'd love to be able to watch a neurosurgical procedure, especially Epilepsy surgery or surgery for a Subdural Haematoma! :lol:

    I'm CRAZY about Neurosurgery and Neurology - you should see my walls! They're covered with really graphic pictures and my mom is totally freaked out by them! :lol:

    However, I have to do a work-shadowing project for school and I really wanted to work-shadow the Paediatric Neurosurgeon at Red Cross Children's Hospital (the best paediatric hospital in Africa), but the hospital cannot take people under nineteen years of age! I was SO disappointed because the Paediatric Neurosurgeon really wanted to take me! My mom's best friend is friends with him and both my mom and her best friend used to work at Red Cross Children's Hospital, so they know a lot of the doctors there. However, my Paediatrician/Paediatric Cardiologist arranged for me to work-shadow one of his colleagues, who is a female Paediatrician and specialises in Asthma and Allergies! I am really excited! I go on Friday 28th September!

    My Psychiatrist keeps insisting that I'd make a brilliant Psychiatrist :roll: and offered to send me to the local Psychiatric hospital to see what Psychiatry is like - still not so sure about that one! :lol:

    Keep well and God bless!

  9. #19
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    Ilovehistory, you can be whatever you'd like to be....I truly believe that about you! (I admit, though, that I might find it less than appealing to have posters of graphic surgeries in my house! :lol: )

    Jody
    "If you trust Google more than you trust your doctor than maybe it's time to switch doctors."

  10. #20
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    Hi Mnjodette!

    Thank you very much! :lol:

    Keep well and God bless!

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